Two years ago, Lorin Miller passed away from stage IV ALK non–small cell lung cancer that had spread to his brain and spine. For nearly a decade, Lorin defied the odds, living a life filled with love, resilience, and unwavering hope. This was made possible through the dedication of his family, friends, and an exceptional medical team.

When Lorin first received his devastating diagnosis, the journey began with an excruciating wait for pathology results. Despite his critical condition, this waiting period proved crucial. The full pathology report revealed the ALK mutation, altering the course of his treatment and providing a beacon of hope.

The Millers embarked on a meticulous search to find the best medical care. Leaving their local hospital, they secured an appointment at Memorial Sloan Kettering Cancer Center (MSK), where a doctor assured them that the ALK mutation had targeted treatments available. This doctor promised that if the initial treatment failed, Lorin would be considered for promising targeted clinical trials that he felt were better than the traditional treatments. 

While under treatment at MSK, the Millers went for a second opinion with another doctor at Massachusetts General Hospital (MGH) in Boston. That doctor read the 45 pages the Millers had sent before they arrived at MGH of thorough medical records, including CDs of all of Lorin’s imaging, chart notes, etc.  She was prepared for the Millers, and they quickly felt very comfortable they were in good hands with the doctor, even though she was about 6 hours from home.  On top of that, she was the principal investigator for several clinical trials that she felt he would qualify for.  But, she wouldn't take Lorin on as a patient unless MSK didn't have a trial for him, which soon turned out to be the case.  When that happened, the Millers drove right from MSK to MGH.  Over the course of many years, Lorin ended up on 3 clinical trials and was part of a patient base that helped each of the trial drugs get FDA approval, benefiting countless others.  There were lots of ups and downs, but that doctor and her team treated Lorin for many years.  

Despite the challenges, those ten years were filled with cherished moments and milestones. Lorin witnessed his youngest daughter’s wedding, celebrated his eldest daughter’s graduation from law school, and welcomed his first grandchild into the world. During the COVID-19 pandemic, the baby and her parents moved in with the Millers, creating unforgettable memories. Images of Lorin, affectionately known as "Pop Pop," holding hands with his granddaughter, sharing meals, and watching Disney movies together remain as treasured reminders of his enduring spirit.

Lorin's positivity was an inspiration to all who knew him. Whenever anyone asked how he was, his response was always, "Great." His mantra, “If you are vertical and ventilating, you have nothing to complain about,” continues to resonate with friends and family, serving as a testament to his strength and outlook on life.

Patients for Patients was established to honor Lorin’s legacy. This organization aims to share the invaluable lessons learned by the Millers and to support other patients and caregivers. Patients for Patients will provide educational materials, resources, and some financial assistance for travel expenses to ensure that patients have access to the best possible treatment, regardless of location.

Lorin Miller's story is one of hope, perseverance, and the power of community. Through Patients for Patients, his spirit lives on, inspiring others to navigate their own journeys with the same courage and grace.